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What is it Cystic Fibrosis?
Cystic Fibrosis (CF) is inherited gained incurable disease, which affects function of sudoriferous glands and implicates higher concentration of salts in lather. Diseased people have up to 5 times saltier lather and because of that they are called Salty Children.

In Czech Republic occurs CF on one of 2500 – 3000 born children. Nowadays there are diagnosed about five hundred of ill people. But about same count isn’t healed at all or under wrong diagnosis. CF affects mainly respiration and digestive system; characteristic is creation of abnormally dense mucus. Diseased couldn’t hawk mucus and so is a multiplied bacterium which affects permanent pneumonia. Dense mucus blocks pancreas and prevents her from creating enzymes which are necessary for digestion. Cystic Fibrosis is also followed by other diseases – diabetes, hepatic cirrhosis, osteoporosis, infertility by men and so on.

Although CF is curable it is not completely curable. About half of diseased people live for 32 years. Diseased needs everyday demanding cure.
 


Cystic Fibrosis diseased people Club
Civil association Cystic Fibrosis people Club was founded in 1992. It is the only non-profit organization which associates and helps such diseased people in CR. Mission of the Club is improving life quality of CF positive people and moreover increasing of awareness (Expert and Amateur). Club provides social services and psychological support. It donates diseased to sanitation and recondition staying. For specialized work places (so called CF centres) it supports tools and equipment.
 
Benefactor of club is actor Ivan Trojan.

 
Actions of Cystic Fibrosis diseased people Club
Cystic Fibrosis diseased people club arranges in cooperation with other organizations many actions, which goal is to inform community about problematic of this disease and to achieve financial resources to help so diseased people.


More information on Web pages of Club diseased by CF www.cfklub.cz or contact Lenka Eislerová, executive director of Club of CF diseased mob.: +420 773 586 325, reditel"zavináč"cfklub.cz

 


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