KONCERT JAROSLAVA UHLÍŘE
Mediální partner SLANÝCH DĚTÍ
1. 11. 2011 - 31. 10. 2012
DOKUMENT O ŽIVOTĚ S CF
DOKUMENT O KLUBU CF
TV SPOT KE ZHLÉDNUTÍ ZDE
Helping salty children
You can´t recognize children with salty sweat disease at first glance. They often look like their healthy peers. You don´t know they need everyday intensive treatment, not even the fact that the disease they have – cystic fibrosis (CF) - shortens their lives despite of modern approaches in medicine. We help children and adults with CF and their families to make living with this disease better and easier.
Who we are and what we do?
The Czech CF Association is a civic organization whose members are families of CF patients. We help children and adults with CF by means of social services and psychological and financial support. Our mission is also to inform the public, both lay and expert, about this disease. The Patron of our association is very well known Czech actor, Mr. Ivan Trojan.
What is CF and who do we help?
Cystic Fibrosis is a serious hereditary disease, affecting especially pulmonary system (lungs) and digestive tract. Children with CF are called "salty children" because of their higher-than-average salt content in their sweat. The CF patients require everyday intensive treatment for the rest of their lives. Currently, CF is incurable. In Czech Republic, only half of CF patients reach age 32.
There are about 500 CF patients diagnosed in the Czech Republic, 1/3 of which are adults. Approximately the same number of patients do not get treated at all, or, they are treated under wrong diagnosis.
Vyhledávání
